1 Feb
Jakarta rains heavily. All I see outside my window is grey and grey everywhere. Sometimes I could see the tree tops swaying played by the wind and some particles of water splashed through the window. I got text message how the flood has started, the traffic got worse and the airport is closed. Blimey.
I am feeling blue. Just found out that Mika had G6PD deficiency. They said it inherited from the mother’s side. My poor baby. Me and my bad genes. I talked to the company doctor this morning. Could it be the daily heparin injection I took during my pregnancy caused this. He said no. But why that does not make me feel better? Anyway, I have been hearing this since yesterday. It suits my feeling.
The Scientist
by ColdPlay
Come up to meet you, tell you I’m sorry
You don’t know how lovely you are.
I had to find you, tell you I need you,
Tell you I set you apart.
Tell me your secrets and ask me your questions,
Oh lets go back to the start.
Running in circles, Comin’ up Tails
Heads on a science apart.
Nobody said it was easy,
It’s such a shame for us to part.
Nobody said it was easy,
No one ever said it would be this hard.
Oh take me back to the start.
I was just guessin’ at numbers and figures,
Pulling your puzzles apart.
Questions of science, science and progress
Do not speak as loud as my heart.
And tell me you love me, come back and haunt me
Oh and I rush to the start.
Runnin’ in circles, Chasin’ up Tails
Comin’ back as we are
Nobody said it was easy,
Oh it’s such a shame for us to part.
Nobody said it was easy,
No one ever said it would be so hard.
I’m goin’ back to the start.
3 Responses for "Heavy Rain"
Very sorry to hear that. I hope that modern medications will be able to greatly help Mika get through this.
A rather similar thing with Sarah - she developed eczema when she was a baby. It was really heartbreaking for Helen; the itch was so bad, Sarah will literally scratch until her skin are gone. She’s bleeding all over, mostly on her cheeks, arms, and legs.
Poor little thing…
and there was no medication available that can cure it. I found out later that some people continue to have the eczema until their adulthood.
We found out later that the itch stopped the instant we arrived in Jakarta.
So finally we asked my mom to raise Sarah, while we went back to UK. These photos are from that time, that’s why we’re nowhere in there.
Then we knew how it felt to be left by one’s child - thankfully ours was not dead, only gone far away. Still we felt horribly terrible.
She grew out of her eczema thankfully, and returned to live with us later.
Then we found out that she’s developed allergic reactions to many things. Her older sister, Anisah, also suffer from allergies. Sarah is more extreme though -she can not eat nuts at all or her body will react very violently, and some other food (seafood mostly).
I think it’s all from her parent, to be exact, me. Still she’s a very loving and caring little girl, as if she’s got no burden at all. She’ll be the first one running into me when I arrived home after a gruelling day at work. It made me feel more guilty, but at the same time I also feel relief, and I welcome the affection very, very much.
I hope she’ll continue to be able to enjoy life at its fullest, and I hope the same for your Mika too. Take care.
Oh dear…*speechless*
Unfortunately Mika’s condition (from what I’ve read so far) is genetically inherited just like me and my Lupus. We just have to learn to live with it and make the best out of it.
Thank you fo sharing. I believe we can turn our ‘less-fortunate’ condition into a blessing once we learn to accept it. I am still learning not to beat up my self too much for everything happened for a reason. Take care.
Sad news, dear friend. But let’s hope that God will send something down to stop the disease.
Do you think it’s worth to try an alternative medication?
Tabe,
Mang Bedjo
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